Two Steps Forward, Three Miles Back....

This morning, we received a very distressed phone call from Little Bird's nurse. Literally moments earlier, the baby's ventilator began to alert that she wasn't breathing. Her nurse rushed into her room to find our daughter holding her breath, and staring blankly and directly ahead of her. Her nurse immediately unwrapped her blankets in an attempt to stimulate her, and that's when she noticed the bulge thru the baby's sleeper. She opened her clothing and found that last week's fundo surgery site opened, and her intestines had eviscerated through the wound. 

In between the staff passing the phone back and forth between the surgeon, anesthesiologist, nurse, and specialist, we were asked if Little Bird had a history of seizures. Her team isn't sure if she was experiencing one when her machine alarmed, or if she was in the midst of shock. As it stands, they are classifying it as the latter until neurology can run further tests. 

Little Bird's surgeon called us as soon as they finished up in the OR. The repair took three hours, but so far she is stabile and will remain under heavy sedation until tomorrow. She is on full vent support right now, as well. I've been arguing with the staff to allow me in for just two minutes to see her. But even swearing on a stack of bibles not to touch her isn't enough to convince them. My head keeps telling me it's too dangerous to expose her to illness, especially right now. But my heart wants to hold her hand and let her know we're watching over her. 

MFH says that maybe she was staring at her guardian angel, and that maybe whoever it is was talking her thru it. I really want to believe him. Yesterday marked six months since Little Bird's birth. Six months spent within the confinements of various hospitals. Today was supposed to include a team meeting to discuss all that her eventual homecoming will involve. It was cancelled yesterday, because of me being sick. When we got the call this morning, we assumed it was about rescheduling this before we even answered the phone. How does it go from a planned conference concerning her release to a life threatening emergency so quickly? We knew from the beginning that it wasn't going to be easy. I just never expected this. 






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