The unit is an intimidating place. The machines, the beeping, the worry. The fear you feel for the new parents and babies that arrive after yours is almost tangible. You can read the expressions on the faces of those who've been there before you, as they are also witnesses to your own first few moments in the NICU. We're all afraid for each other as much as we are ourselves. We want to go home, and we want them to go home, too. We are all on the same team. A thumbs up from across the room when your child is extubated. A hug in the elevator from a not so unacquainted stranger who reminds you that this too shall pass. A quick update in the bathrooms when you bump into each other, one coming, one going. An email from someone you've never formally met, yet you wear the same shoes. All striving for that one goal. In such a lonely place, we are never truly alone.
Yesterday, I received a friend request from a fellow NICU Momma on Facebook. Her name is Devan, and we have a lot in common. Her son, Carter, is nearly seven months old. They've spent those seven months fighting the good fight, as Carter was born with a condition known as OEIS Complex. It is a mouthful of a diagnosis, affecting pretty much all of his digestive system. In half a years time, this precious little boy has battled thru more than I've experienced myself in the past thirty three of my own life. Yet, he greets each day with a spirit and a smile as big as the sun itself. If you're reading this entry, then you must go here http://carterslove.blogspot.com/2011_05_01_archive.html and meet this extraordinary family.
I met Devan thru our mutual friendship with Megan, who I've known for several years. Megan's son, Trennor, was also born with OEIS, and he can really use your help. In his honor, an organization has been formed to raise funds that help with the staggering expenses that threaten to hinder the medical care he needs in order to heal and grow, so he can continue to shower his mommy and daddy, and so many friends with playful giggles and kisses everyday. Your contributions will help not only this amazing little boy, but other children with special needs who soldier on so bravely as well. I urge you to take a few minutes and visit http://www.facebook.com/groups/218678161503420?ap=1 Get to know Trennor and his family. I promise you, his energy is infectious and his smile is contagious!
You may not realize how much even a few words of encouragement can comfort, but they do. Every prayer counts. It's what gets you thru another day. All any parent wants is a healthy child, and it's what every child deserves. While you're praying with us for Little Bird, please think of Trennor and Carter, and the little friends they make along the way. No offense to the nurses out there, but if we could, we'd gladly put you out of business. An empty children's unit is a happy homecoming.
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